Pray for Katie

Katie is 13 years old and was diagnosed with Hodgkin's Disease, a lymphatic cancer. This site is a request to pray for her. Call her prayer pager 1-361-333-KATY (5289), enter your ZipCode and # key, to let her know you have prayed for her. Updates of her progress will be posted on the site. The Power of Prayer is Awesome.

Friday, May 27, 2005

THREATS TO TAKE KATIE AWAY FROM US

Laura Esparza, Dr. Alter's social worker at Driscoll Children's Hospital called on May 26 and asked which of the two doctors, Alter or Mullins, we were choosing and if we were ready to go ahead with the radiation treatments. I told her we had not made up our mind yet as it had only been 2 days, and the doctors did not even agree on the treatment methods and we needed another opinion. She said we had three opinions and she was contacting Child Protective Services to force us to do the treatments. I guess she was counting Dr. Garlitos as an opinion, but he was the one doing the treatment only.

Kim Garcia, CPS investigator, calls my wife Michele on May 27th at about 2pm at work and tells her "doctor Alter sent her a letter and you have ten days to give an answer what we were going to do." Michele told her we were talking to a lawyer and to talk to him. She called back at 4:55pm and said that Michele had to give her an answer by this Tuesday May 31st and that our lawyer would be out of the office until Wednesday. She lied about that to try to trick us into making a quick decision.

Basically they are accusing us of medical neglect of Katie in not getting these radiation treatments for her. Dr. Alter wants to use CPS to force Katie to have the radiation treatments. Yet it is the doctor who did not feed her for four days in the hospital, who has not monitored her since she was out, did not do blood tests, or cleaned her chemo port in the last month. He is guilty of medical neglect, not us.

Thursday, May 26, 2005

Katie - Highest Grade Point Average in the 7th Grade

I am proud to say that Katie had the highest grade point average in the 7th grade class at Banquete Jr. High. She missed almost all of the entive second half of the year of school and received only 4 hours of instruction a week by home bound teacher Terrie Whitley. That is quite an accomplishment! She did get to attend some half days the last two weeks of school. She is very smart and very self disciplined to get all that homework done between clinic visits and extended hospital stays. And we want to keep her that way.

Dad

Wednesday, May 25, 2005

SECOND OPINIONS

Katie continues to do fine without treatment. They were not monitoring her even though she had just had a blood transfusion. We had to insist that they test her blood the last two times two weeks apart. We kept all of her appointments.

We saw the radiologist Dr. Garlitos on May 11th and asked about the potential damages and side effects. He told us it was like 1 in 100,000 chance of any side effects, I know from the cancer literature that is not so. We asked for a second opinion and went by the clinic for a blood test. We saw Dr. Alter the next day to flush her port and he said Katie was doing very well. He tried to talk her into seeing a shrink. We asked him to see another doctor for a second opinion on the radiation treatment. Dr. Alter did not flush her port even though we were in the office for over four hours. When I asked him why not, he said he'd do it next week but set no appointment to do it.

We saw a Dr. Judith Mullins on May 24 for a second opinion and she didn't agree with Dr. Alters treatment of the cancer. She had difficulty trying to read the CAT scans and said she would discuss them with the radiologist. Dr. Mullins said she would do another chemotherapy and then follow with radiation therapy. Dr. Mullins did a chest X ray and could not say the tumor was growing. We had to get Dr. Mullins to flush Katie's port. Dr. Mullins could not tell us why we had to do the radiation treatment. She just said it might come back and then it would be worse. But why do it when there is no active cancer present according to the PET scan? The side effects seem more dangerous then the possibility of cancer coming back. Even after chemo + radiation the cancer can come back. Probably because they have destroyed all what is left of the immune system. All we heard in the clinic was "he is back because his cancer came back after a year" repeatedly.

Friday, May 20, 2005

Fund Raiser for Katie to Help Pay Her Medical Bills

Helping Kids With Cancer

A fund raising site for Katie has been set up at www.helpingkidswithcancer.com

Please donate to help pay the medical bills of Katie. You’ll get some great e-books with recipes for cookies, breads, cheesecakes, chocolates, desserts, ice cream, jams, kids, deep frying and more. There are e-books on gardening, landscaping, time management, self improvement, stop smoking, wedding gifts, Microsoft secrets and smoothies for athletes.

Please email all your friends on your email list to go to http://www.helpingkidswithcancer.com/ in order to make this a successful fund raiser for Katie.

100 % of all sales go directly to pay Katie's medical bills!

Thursday, May 12, 2005

Radiation Treatments

When we started our treatments Dr. Alter explained to me and Katie his treatment protocol. Dr Alter said Katie would get 2 chemo treatments + radiation OR 4 chemo treatments only. If response to chemo was good after 2 treatments it would be followed by radiation if not we would get 2 more chemo treatments. That was the way it was explained to us before we began any treatments. Now Katie has completed the 4 chemo treatments and now the doctor is changing the treatments. Now they want Katie to go through the radiation treatments also.

We were refered to and saw the radiologist Dr. Garlitos on May 11th. We asked him questions as to the dangers and side effects of the treatments. He told us she would receive 21 units over 3 weeks and that this was a much lower dose than used in the past of 35 units on adults. But Katie is a small child with little body mass and proportionately that is a much higher dose than an adult.

The Dangers of Radiation Treatment

Radiation would be done to Katie's chest. She is 12 yrs old and hasn't developed sexually and is not physically mature yet. The radiation would damage her lungs (cystic fribrosis), her heart muscle would be damaged, her breasts would be damaged and would likely develop breast cancer later, and her spinal column in her back would be damaged and she would not grow any taller and may have learning problems. Her thyroid and thymos glands would be damaged and she would have hormone problems. Immediate side effects are nausea and vomiting, low blood counts, mouth sores, and skin burns.