Meeting with Doctors and CPS at M. D. Anderson
Edward informed the doctors that he and Michele were not guilty of medical neglect of Katie and that this will be proved later and asked that the doctors consider our wishes in making any treatment decisions for Katie even though CPS had the current right to make all medical decisions.
The doctors claimed they found cancer cells in the 90% of the thymus gland that they removed. (Note: Previously they found no cancer cells in the 6 needle biopsies and in the direct microscopic examination of the thymus tissue). This was hard to accept and Michele started to cry and tears filled my eyes. Their proof: one tissue sample slide and one cell slide picture projected on a screen. The cell picture slide showed a picture of about 1000 normal looking cells with 4 cells with double nuclei. These 4 they said were cancer cells called Reed Sternberg definitive for Hodgkins. Is that all they could find? There must have been hundreds of slides prepared from all the tissue since they took out 90% of the thymus gland, yet they showed us just one slide and 4 cells. And, remember, they removed this thymus gland from the body, so is there anything left in the body? They didn't find any cancer any where else. Dr. Nunez disputed that they removed 90% of the thymus gland from the body. Why? Dr. Hayes-Jordon told us plainly on the day of the surgery that she "removed 90% of the thymus gland". And Stella Klein, CPS, verified that is exactly what Dr. Hayes-Jordon told us that day. After that Dr. Nunez was silent about it. Also note that they said the thymus gland they removed was not in the normal position (about 2 inches below the collar bone under the breastbone). Why did they enter from the ribs in the back and collapse her lung when they could have entered from the throat?
The doctors presented their treatment plan for Katie consisting of and in this order:
1. 4 more rounds on a new chemo consisting of ifosfamide and vinorelbine consisting of 21 day cycles.
2. High Dose Chemo in prepartion for Stem Cell Transplant.
3. Stem Cell Transplant
We listened and then we asked some more questions. For the record: We did not dispute the chemo treatments. Katie said she did not want radiation. Edward said he and Michele did not want radiation for our daughter Katie and that was our postion from the beginning. Dr. Wells told us that this treatment plan was M.D.Anderson's recommendation and that we had no choice. There were no options of A,B,C,or D.
CPS said they would sign the consent form to begin the treatments.