Radiation Only Results for Stage II Hodgkins
Sent: Monday, June 13, 2005 5:38 PM
Dear Katie and family,
In 1987 my 15 year old brother was diagnosed with stage II Hodgkin's lymphoma. At that time my parents took him to the best doctors and hospital in our area which was Childrens Hospital of Michigan. They recommended that he be treated with radiation and no further therapy. They never offered any other treatment options nor did they explain the risks versus the benefits of the radiation treatment. He received a course of radiation that was very difficult for him and then he was told he was in remission. He frequently went back for about 7 years for follow up exams and we were told that his cancer was cured. Three years after that he began experiencing severe headaches. For a year he was misdiagnosed with sinus infections. Then when he was 26 years old he was diagnosed with Oligodendroglioma which is a from of advanced brain cancer. A few years later he was also diagnosed with advanced thyroid cancer. Only then were we told that these cancers were the direct result of the radiation treatment that he had received for the Hodgkins. Essentially, had we been more informed and demanded other treatment options he might be healthy today. Unfortunately people have a tendency to listen to everything that doctors say as though they are "god". My parents regret not being more assertive with my brothers care. I just wanted to share my story with you because I strongly support you and your family at this difficult time. I cannot fathom why the state thinks that they should have any involvement in your care. It is simply ridiculous !!! Whatever treatment you and your parents decide to do please make sure that you research everything you can about it. Ask a million questions and demand accurate answers. Good luck and I will pray for you.
Katie replied to her dad about this email: "It really shows that the doctors don't know what they are talking about. Sure they follow up for five years but they don't know what happens after that. Doctor Voorhees didn't tell that I could get thyroid cancer and brain cancer from radiation so He lied about that. Right? "