Pray for Katie

Katie is 13 years old and was diagnosed with Hodgkin's Disease, a lymphatic cancer. This site is a request to pray for her. Call her prayer pager 1-361-333-KATY (5289), enter your ZipCode and # key, to let her know you have prayed for her. Updates of her progress will be posted on the site. The Power of Prayer is Awesome.

Wednesday, May 25, 2005

SECOND OPINIONS

Katie continues to do fine without treatment. They were not monitoring her even though she had just had a blood transfusion. We had to insist that they test her blood the last two times two weeks apart. We kept all of her appointments.

We saw the radiologist Dr. Garlitos on May 11th and asked about the potential damages and side effects. He told us it was like 1 in 100,000 chance of any side effects, I know from the cancer literature that is not so. We asked for a second opinion and went by the clinic for a blood test. We saw Dr. Alter the next day to flush her port and he said Katie was doing very well. He tried to talk her into seeing a shrink. We asked him to see another doctor for a second opinion on the radiation treatment. Dr. Alter did not flush her port even though we were in the office for over four hours. When I asked him why not, he said he'd do it next week but set no appointment to do it.

We saw a Dr. Judith Mullins on May 24 for a second opinion and she didn't agree with Dr. Alters treatment of the cancer. She had difficulty trying to read the CAT scans and said she would discuss them with the radiologist. Dr. Mullins said she would do another chemotherapy and then follow with radiation therapy. Dr. Mullins did a chest X ray and could not say the tumor was growing. We had to get Dr. Mullins to flush Katie's port. Dr. Mullins could not tell us why we had to do the radiation treatment. She just said it might come back and then it would be worse. But why do it when there is no active cancer present according to the PET scan? The side effects seem more dangerous then the possibility of cancer coming back. Even after chemo + radiation the cancer can come back. Probably because they have destroyed all what is left of the immune system. All we heard in the clinic was "he is back because his cancer came back after a year" repeatedly.

5 Comments:

  • At Sat Jun 11, 09:02:00 AM 2005, Blogger Roz said…

    Have you contacted American Family Rights Association to see if they can be of any assistance? Go to www.familyrightsassociation.com for support and assistance in your state. CPS is VERY wrong!

    Roz McAllister, AFRA-OH Chapter Pres.

    We're praying for you all!

     
  • At Sun Jun 12, 08:15:00 PM 2005, Blogger Empathic One said…

    "Dr. Mullins could not tell us why we had to do the radiation treatment. She just said it might come back and then it would be worse. But why do it when there is no active cancer present according to the PET scan?"

    The above quote shows lack of even basic understanding of the limits of PET scans. Yet, the parents are trying to dictate treatment options??? I would like parents to be involved in care decisions, but the more I read from the parents blogs, the more I am alarmed that CPS may be right! They are actually making truly bad choices based on incomplete understanding of disease & technology, and ascribing malice where there is none!

     
  • At Mon Jul 18, 08:36:00 PM 2005, Blogger justme said…

    If Dad Wernecke keeps up all the derogatory public comments about Katie's doctors, the judge will have little choice but to continue to exclude him from decision making. Isn't that what started this whole mess, Daddy blowing off all the information he didn't want to hear/agree with?

     
  • At Wed Nov 30, 11:13:00 AM 2005, Blogger MariaMom2KT said…

    I think the two above psters have no clue
    DUH
    didn't you read
    They were only requesting a THIRD opinion...after the first two doctors didn't agree!
    and I hope they continued to read the story as we all learned thru Dad to Katie....the doctor wasn't even qualified to order ANY cancer treatment...
    In fact if I understood it right there were two doctors who were involved and neither one of them should have been practicing medicine
    I hope they lost their licenses!

    Ignore these idiots who know not what they speak of!

    I am so happy you are now home Katie!

     
  • At Sat Dec 17, 11:53:00 AM 2005, Anonymous Anonymous said…

    "Radiation would be done to Katie's chest. She is 12 yrs old and hasn't developed sexually and is not physically mature yet. The radiation would damage her lungs (cystic fribrosis), "

    I don't know whether the above is coming from Katie, her parents or the doctors but whoever it is is very uneducated. If its the parents than its scary that they are fighting to make radical medical decisions for her because they obviously don't understand a lot of what they are saying. If its Katie then someone has been lying to her and if its a doctor then they need to go back to medical school.

    Cystic fibrosis is genetic! It takes two genetic mutations from each parent and is present from birth! It is not acquired! Therefore radiation can NOT cause it. Nothing except genetics can and then like I said it is present at birth

     

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