Katie is Back in Hospital Needs Blood Transfusions
The doctor had a hospital social worker call the Texas Child Protection Services and did the blood transfusion without our approval. They told us in Texas ( and most states) we have no right to refuse a medical treatment for our child. The parents have no rights at all to decide on the childs treatments with the doctor. The doctor is playing God. It isn't the cancer that is killing her and making her blood counts low. It is the chemo treatments themselves that make the blood counts low and caused the need for blood transfusions. If doctor Alter had waited another week as we reqested she would have recovered enough not to need a blood transfusion.
The chemo treatments are barbaric, consisting of deadly chemicals that were even baned from war, and work on the premise that cancer is a fast growing cell and if you can kill all the fast growing cells in the body you can kill the cancer, if you don't end up killing the patient too or dying from a secondary infection ( then you didn't die from the cancer). Of course you have fast growing cells in your hair, your mouth and throat lining and your stomach lining and that is why your hair falls out and your mouth, throat and stomach linings slough off and cause all the mouth and throat sores and you through up your insides and get diarrhea.
While she was in the hospital this time her mouth and throat sloughed off and was raw and she had mucositis. Her body was producing so much mucos in her throat she couldn't swallow and was choking on the stuff and coughing it up and throughing it up. She couldn't and didn't eat anything for four days. They had her on IV's, potassium and saline, but no feeding tube. She lost about 8 pounds and she didn't need to lose another ounce. I don't call that proper care. I think of Terrie Schiavo. That woman didn't have to die.
Why was it worse this time? Well my wife found out that they give ever increasing doses of the chemo drugs after each treatment. The doctor and social worker also did not help things by not giving Katie a positive attitude and a will and desire to go on and compete in her Bible Drill and softball. They said "there is always next year". But that is her life, and what she enjoys and looks forward to. They have also taken her out of school and away from her friends. When her immune system is strong enough I take her to the school for lunch so she can be with her classmates and friends. Baseball, school, church, and her friends are what keeps her going. She told me at the beginning that "its only cancer, dad". She didn't want to be informed of what was going to happen in the future and all the possible side effects. She said she would take it one day at a time. She is my brave little christian soldier. Got to quit before I cry.
She got out of the hospital on April 11th. She will beat this. Thanks for all your prayers.